Most of the people that see me, whether friends, people at the store, or even some family have no idea what has to be done on a daily basis to try to maintain or prolong any decrease in my health. When someone looks at me they have no idea that 9 times out of 10 I'm running on half the lungs they are and that my body is fighting off infections all the time.
Although I am happy to say I don't "look sick" (as is the case for most people with CF, Bronchiectasis, and some other life threatening diseases) sometimes it makes people not believe me when I say I don't feel good or when I ask for some help because it's much harder for me to do certain things.
The last time I was in the hospital I got upset because I feel like my dad doesn't take this serious. I cant fully blame him because I was diagnosed with CF at 12 and wasn't hospitalized till I was 20 and at that time I was already living on my own. He never got to see all the struggles that most CF parents do. Now with my lung function at 44% and being scared I thaught that he would have been there for me. I know that I am an adult and that he has other things to worry about including my 7 year old brother but I am his daughter. Even though he did come to visit me a few times he doesn't really focus on me and when I talk I feel like I'm talking to a brick wall. I am not over the situation completely cause sometimes I feel like he doesn't really care. It's hard to discuss with him cause he's always "so busy".
Now that I got to vent, Dad if you read this sorry but hopefully you will understand how I feel.
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